Pen in Motion

I don’t want to complain and bemoan my situation – that won’t make it better. In fact, it will up the stress and kind of literally make things worse.

But…

I’m so tired of this! I’ve been dealing with these weird symptoms that are neurological, neuro-muscular, gastric, muscular, psychological, cardiovascular, and endocrinological. Woot. And….(drum roll) no one knows the why/when/how/what – double woot!

I call them “episodes” – the symptoms didn’t start out severe, but it’s all gotten progressively worse since May 2023.

What happens? It varies, but I will suddenly become physically weak and fatigued (out of nowhere). My speech becomes super sluggish and sometimes I can even form words. Sometimes my heart rate and breathing increase. Often, these symptoms are all precursors to muscle spasms that often start around my abdomen and quickly move upward…my chest, neck, and sometimes jaw all lock up and I can’t breathe.

I’ve never passed out, but my husband has always been here to press on my chest and force the spasm to stop enough for me to breathe (then everything locks up again). Heat used to help, but now it only stops with drugs.

I was referred to a neurologist who specialized in weird cases/autoimmune/ neuromuscular problems. She ordered 75 labs, 6 MRIs, a neuro- psych eval, and 2 EEGs (1 lasted 3 days)….and nothing! My brain and spine were normal, and EEGs showed no seizures.

The only clue was from my GI specialist who diagnosed small bowel Crohn’s. Apparently if the inflammation is severe enough, it can cause neurological symptoms. The hard-to-see neurologist who was supposed to be super thorough was done – she didn’t order nerve scans or dig any deeper. She was done being thorough.

I started Crohn’s infusions and the episodes actually stopped. Big YAY. Then my GI ordered a CT with barium contrast…I made it halfway through the barium solution when spasms started. Bad this time. I was rushed to the ER and given Valium (what makes the spasms stop).

That was 12/28…I’ve had multiple episodes every day since. EVERY.DAY. I have a new medication to help the spasms, but it doesn’t help my nerves which stay tense all the time. My next infusion is in 3 days and I hope that helps again.

My husband is kinda done spending money on tests and doctors. Me too. But it’s also frustrating not knowing what is happening to me…not knowing what triggers these things, and how I can help. We’re just trying to deal.

Plus, I’ve gained weight – extra annoying because I worked so hard to lose weight AND had a tummy tuck last year to remove all the extra skin.

That’s it, I think. For now.

It’s amazing what you learn when you’re not expecting it.

Apparently, writing is good for you. And not in a “creativity helps my soul” kind of thing, but it’s actually beneficial to the brain and body.

Presently, my professional writing consists primarily (almost entirely) of creating marketing copy. And more specifically, social media marketing copy. My clients (through my employer) range from carpet cleaners to home repair to real estate to business coaching to solar panel installation. It’s interesting (sometimes) and I learn a lot about things I didn’t previously know through research.

Skip to today: I am writing for one of the business coaches and the topic is gratefulness and journaling. Apparently, gratefulness is also good for the brain and body. Really good.

But journaling – even as a writer, the idea of journaling never appealed to me. I remember having a diary/journal as a young girl, but I grew out of that. I worked at a Christian bookstore a few years ago when journaling bibles became all the rage – it never grabbed my attention.

However, according to my researching, expressive writing is shown to improve the body’s immune system. For real! It also reduces stress and improves memory functions. Amazing, right?

I realized two things: (1) I never cared about journaling because I had poetry through which I expressed myself. And I had my blog. Sometimes I discuss really personal things, but not too often; but the very act of writing help me work things out. (2) I haven’t written expressively in a LONG time. I have done spurts here and there, but not consistent. My life changed when I married a few years ago and inherited a live-in MIL, so a lot of things were pushed to the background.

Sadly but truthfully, these days, I would rather spend my free time playing Stardew Valley. It’s terrible, right? In my defense – it’s still kind of like writing my own story without actually writing.

But I do miss the writing, and apparently, so does my body. I need to get back here. I miss the spontaneity that came with a poem when it dropped into my head. (Sigh) I need to work on this. AND be more grateful.

The bottom line: Be grateful and help your brain. Write and help your body.

Ever feel like you need to draw a line in the sand? Even if no one else is demanding it or even cares – you have to do it for you?

So, this is my line…the blog and the internet is my sand.

I’m a Christian. I love God. I believe that Jesus is the Son of God. I believe the Bible and I choose righteousness over everything else.

I’ve been a Christian my whole life, just not overly vocal about it. I didn’t deny my faith, but I also didn’t proclaim it all that much. I didn’t want to “preach at” people. I didn’t want to upset people. I was way too worried about what people thought. I was actually scared of negative reactions. I could blame it on being an introvert, but really – I was a coward.

I have always loved God, but I was also way too willing to compromise to fit in. It makes me sad to think of all the hurt I went through because I wanted people to accept me who really weren’t worth it. And I denied the one person who loved me more than anything – Jesus.

I’m not going to preach at you every day. I’m not going to judge you or criticize your life. But I also don’t care anymore what you think of me. Jesus is more precious to me than your opinion.

I’m not trying to live for God anymore…I’m just doing it. Do/do not – there is no try.

That’s all. Have a great day.

I’m waiting for my client to get back with me about whether the house I’m supposed to describe is a duplex or not – so I’m typing here in the meantime.

I haven’t posted any prose in a while – not because I don’t have thoughts or anything I want to say. And not because I’m clogging up my Facebook page with those words. I finally decided to try out Instagram a few years ago and I mostly post pictures of my cat Blu. I don’t know when or if I will ever dip my toes into Twitter or TikTok. I don’t think it’s an age thing (I’m almost 43)…maybe it’s a writer nerd/grammar Nazi thing?

I barely remember to post here anymore. It’s terrible. I’m a writer who barely writes. I was introduced to Stardew Valley last year by my now husband and I am hooked. We have started 4 different co-op games and played hard until we completed all there was to complete in less than 3 years (game time). He gets bored in games with no immediate tasks, so we would take a break and then start another game.

Now I’m doing a solo game and it’s taking up a lot of my time. And life is also taking up a lot of time. I feel like a brat complaining about not having any alone time anymore because most people/couples my age haven’t had much alone time for at least a decade or more (yay kids). I don’t have kids, but I do have two dogs and my elderly mother-in-law who lives with us and requires a fair amount of attention.

So, writing has suffered. I got lazy. I have an MFA in creative writing and the extent of my creativity anymore is how to describe stone counters with the right balance of adjectives and “feeling”.

I still write poetry sometimes though. I still find myself in awe of lovely writing. And I still imagine how the worlds of character continue after I step away from the book or movie. So I’m not totally jaded.

And back to my farm – I have multiple spreadsheets set up to chart my progress with the different quests/tasks/etc. It’s a little ridiculous. I still haven’t chosen a spouse, but I have to do that to get the kids. Boo.